Muscular dystrophy

More than 70,000 children and adults in the UK have a muscle-wasting condition. A further 350,000 people are affected indirectly as family, friends or carers. Muscle-wasting conditions cause muscles to weaken and waste over time, leading to increasing disability. These rare and very rare genetic conditions may affect not only the muscles in the limbs, but also those of the heart and lungs, sometimes significantly shortening life-expectancy.

Duchenne muscular dystrophy, one of the more common conditions, is a life-shortening muscle-wasting condition, caused by the lack of a vital muscle protein called dystrophin. The condition causes muscles to weaken and waste over time, leading to increasing and severe disability.

Muscular Dystrophy UK’s have developed an Adaptations manual for children and adults living with muscle-wasting conditions to address the challenges of delivering the often very complex adaptations required.

Revised by occupational therapists who work closely with families living with muscle-wasting conditions, the updated guide includes examples and practical information about what is available to families as well as an outline of the process of making adaptations to the home.